The Federal District Court (TJDFT) has granted home care to the twins Alan Araújo de Lima in a ruling announced this Thursday (November 13), two months after his younger brother Artur Araújo de Lima obtained the right. The boys, now 14 years old, were born with a rare, fatal degenerative disease and require ongoing home care to reduce pain and help them survive with a better quality of life.
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The brothers live in their parents’ home in Planartina (DF) but were denied home medical care by the Federal Regional Health Service (SES-DF). The court initially granted treatment to Alan only in September 2025, as the proceedings were conducted separately. This judgment comes from the DF’s Fifth Fiscal and Public Health Court.
The twins’ mother, Ana Raisa Fonseca de Lima, 34, cried with joy after seeing the new ruling. “I was very nervous, because the way I want one to be treated, I want the other to be treated the same way. They are twins and have a very strong bond. Everything should be the same, with equal rights. I watched it in the afternoon and early in the morning. When I saw the movement, I quietly started crying. They both deserve the care and quality of life they deserve.”
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Alan and Arthur were born with Batten disease. It is a progressive and incurable disease. If young people don’t move, their muscles will atrophy. And the patient suffers from severe pain. Therefore, complete home care treatment with physical therapy and medication is essential for young patients. According to the ruling signed by Judge Henardo Silva Moreira, the office must begin providing home care for Arthur within 30 days. This is the same judge who ordered Alan’s treatment.
Anna said Alan’s health has improved greatly since he started receiving home care. “He was in a lot of pain. We didn’t know where the pain was coming from because they wouldn’t talk. After the multidisciplinary home care team started treating him, the pain decreased significantly. They changed his diet and adjusted his medications. He has physical therapy every day, which he does from Sunday to Sunday. I feel fulfilled that he is receiving care and improving his quality of life,” she commented.
From the point of view of the twins’ mother, after a long legal battle, the judicial authorities accomplished their mission of guaranteeing their rights. “This saying is very common, but it is true. Justice takes time, but it never fails. I am very grateful to the judge. He did his part and ensured that justice was served,” he pointed out. According to the judge, DF “has a legal obligation to provide Plaintiff with the medical care she needs and to ensure her care through services maintained directly or indirectly by the Integrated Health System (SUS).”
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In Anna’s case, the Ministry of Health will have to change its patient intake protocols. “The administration should act with more empathy towards patients. The program exists on paper, but it is not reaching the patients who need it most. It is very inhumane. It is revolting. It does not put itself in the patient’s shoes.” The young people’s mother said Alan and Arthur’s case set a legal precedent for other families to gain access to home care through SUS through the courts.
The new proclamation is a dream come true for Anna. “As an atypical mother, what I always dream of for Alan and Arthur is that they never suffer in any way and can always be comfortable. That way they will be happy while they are with me. I want dignified care with a quality of life, without suffering or pain. “Never give up on pursuing what you need for your child, even when everything is against you. God is slow, but he never fails,” she said.
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The big city We have contacted the Ministry of Health. This space will remain open for demonstrations.
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